25 pensieri su “MS & CCSVI Info Session, Kerri Cassidy”
Good to see you in fine voice Kerri. John n Kate. xx
Kerri I just stood up and applauded! I am so happy that you are my friend and I am truly honored. I am very fortunate to know people such as yourself who are truly like of mind. That was an amazing speech and right on my sister. I truly appreciate and have always appreciated your very realistic approach to this. To say that was a great speech does not go far enough. Thank you for being such a strong, pragmatic voice for so many people. Hugs and love, Judy
@cityonfire31811 Thank you
@shoshi551 Thank you, but can I ask why you do not feel proud to know Hebrew? Is anything happening in Israel regarding CCSVI?
@h0mer37 Thank you I appreciate your support
@rickileeway Thanks Rick.. Lee ) Appreciate your comment. I am sorry I did not get a chance to ask your question – there seemed to be so many lining up! Kerri
@lovingfatalist Thanks buddy. Not even one toe? Thanks for your pre-event thoughts, I dedicate the ‘over caution’ part to you
@BrendaRaven1 Thanks Brenda
@christinedavi Haha – yep it felt good to just say it out loud and proud knowing it was the sentiment of so many people. Thanks Christine.
@STINGOALI Thanks and too right – if we have something broken we have the right to have it fixed. Having MS is irrelevant.
@SHIRLEYRENSHAW Thanks Shirley. So lovely to have support from so far up North!! I am sure that what is done in one corner of the globe knocks on to other countries, just like what is happening in Canada is loudly repeated down here. xo
@langucha Thank you, I should say though there are so many people at work in different ways here and in other countries. To see people fighting to be the final authority on their own health decisions is life and hope. K
@MrPauljd Thanks Paul. I mentioned to a MSS staff member over the weekend that the most disappointing part of this whole story is that those entrusted with our primary care simply are not interested in listening to the anecdotal evidence even when it is sitting in front of them wanting to be acknowledged. It just highlights the disconnect, apathy and really a disbelief that a cure for MS will be found by neurology in general.
@cowboystew Thanks Nancy. I hope it is persuasive as it was primarily directed at the people who have the power to change things. Hope it makes some dint! K
@boatjohn1 Thanks John. Hi Kate missing Brissy? I was just there a couple of weeks back
@donotconcede Thanks Jude. Hahaha I can just picture you doing that in your room! We are lucky to have so many around the world to spur us on. Gone are the days when people were isolated in their own homes and rarely met others in the same position – now the world is so much bigger and there’s strength in numbers. xo
Excellent Presentation, Kerri. Thank You for Advocating for us. : ) ….
Kindest Regards. Lou
@kezzcass That’s fine Kerri. Really didn’t expect it to be answered anyway since I knew there’d be so many of them.:)
i can’t speak in hebrew since the common idea of the neuro professionals and everyone here is that ccsvi is totally bullshit and placebo effect of histeric (women of corse) and as so i’m considered an histeric woman that thaughts ccsvi can make me return to my eighteens. i feel awful and distress and i’ve no one who is willing to listen me
@LouLou3078 Thanks Lou, wish you could have been here
@shoshi551 Ahhh now I understand. I hope one day soon you will be validated and that someone will listen. In the meantime I hope you can join others around the world online for understanding
THANK YOU KERRI for being a Ccsvi Champion and Pioneer !!!
You seem incredibly Comfortable in front of an audience…really Super Speech!!
So happy you have found Ccsvi venoplasty/ ‘Liberation’ so curative! I agree…’ms’ IS a Vascular Condition exhibiting / creating Neurological Symptoms.
Bravo Kerri! You did a brilliant job. Thanks for putting our case forward. I am off to see my neuro on Wednesday and am going to tell him about all you have said. You are truly awesome and inspirational thanks. Liz
@kkkkkkatherine Hi Katherine, I looked comfortable? hahaha – I think had so many people willing me through it. It is always easier to speak about something when it is your experience and you strongly believe it. Thanks for you kindness. Kerri
@wheeliz Thanks Liz, Next time I see my neuro this is what I will be asking him: “Can you tell me what poor blood drainage would do to a brain? If your brain wasn’t draining properly would you be concerned? Can you explain to me why the CCSVI hypothesis is implausible? It is not enough to say we know that it is auto-immune because MS responds to DMDs. Is it possible that something is prompting the immune response? Could it be CCSVI?” Just some thoughts
Good to see you in fine voice Kerri. John n Kate. xx
Kerri I just stood up and applauded! I am so happy that you are my friend and I am truly honored. I am very fortunate to know people such as yourself who are truly like of mind. That was an amazing speech and right on my sister. I truly appreciate and have always appreciated your very realistic approach to this. To say that was a great speech does not go far enough. Thank you for being such a strong, pragmatic voice for so many people. Hugs and love, Judy
@cityonfire31811 Thank you
@shoshi551 Thank you, but can I ask why you do not feel proud to know Hebrew? Is anything happening in Israel regarding CCSVI?
@h0mer37 Thank you I appreciate your support
@rickileeway Thanks Rick.. Lee
) Appreciate your comment. I am sorry I did not get a chance to ask your question – there seemed to be so many lining up! Kerri
@lovingfatalist Thanks buddy. Not even one toe? Thanks for your pre-event thoughts, I dedicate the ‘over caution’ part to you
@BrendaRaven1 Thanks Brenda
@christinedavi Haha – yep it felt good to just say it out loud and proud knowing it was the sentiment of so many people. Thanks Christine.
@STINGOALI Thanks and too right – if we have something broken we have the right to have it fixed. Having MS is irrelevant.
@SHIRLEYRENSHAW Thanks Shirley. So lovely to have support from so far up North!! I am sure that what is done in one corner of the globe knocks on to other countries, just like what is happening in Canada is loudly repeated down here. xo
@langucha Thank you, I should say though there are so many people at work in different ways here and in other countries. To see people fighting to be the final authority on their own health decisions is life and hope. K
@MrPauljd Thanks Paul. I mentioned to a MSS staff member over the weekend that the most disappointing part of this whole story is that those entrusted with our primary care simply are not interested in listening to the anecdotal evidence even when it is sitting in front of them wanting to be acknowledged. It just highlights the disconnect, apathy and really a disbelief that a cure for MS will be found by neurology in general.
@cowboystew Thanks Nancy. I hope it is persuasive as it was primarily directed at the people who have the power to change things. Hope it makes some dint! K
@boatjohn1 Thanks John. Hi Kate missing Brissy? I was just there a couple of weeks back
@donotconcede Thanks Jude. Hahaha I can just picture you doing that in your room! We are lucky to have so many around the world to spur us on. Gone are the days when people were isolated in their own homes and rarely met others in the same position – now the world is so much bigger and there’s strength in numbers. xo
Excellent Presentation, Kerri. Thank You for Advocating for us. : ) ….
Kindest Regards. Lou
@kezzcass That’s fine Kerri. Really didn’t expect it to be answered anyway since I knew there’d be so many of them.:)
i can’t speak in hebrew since the common idea of the neuro professionals and everyone here is that ccsvi is totally bullshit and placebo effect of histeric (women of corse) and as so i’m considered an histeric woman that thaughts ccsvi can make me return to my eighteens. i feel awful and distress and i’ve no one who is willing to listen me
@LouLou3078 Thanks Lou, wish you could have been here
@shoshi551 Ahhh now I understand. I hope one day soon you will be validated and that someone will listen. In the meantime I hope you can join others around the world online for understanding
THANK YOU KERRI for being a Ccsvi Champion and Pioneer !!!
You seem incredibly Comfortable in front of an audience…really Super Speech!!
So happy you have found Ccsvi venoplasty/ ‘Liberation’ so curative! I agree…’ms’ IS a Vascular Condition exhibiting / creating Neurological Symptoms.
Bravo Kerri! You did a brilliant job. Thanks for putting our case forward. I am off to see my neuro on Wednesday and am going to tell him about all you have said. You are truly awesome and inspirational thanks. Liz
@kkkkkkatherine Hi Katherine, I looked comfortable? hahaha – I think had so many people willing me through it. It is always easier to speak about something when it is your experience and you strongly believe it. Thanks for you kindness. Kerri
@wheeliz Thanks Liz, Next time I see my neuro this is what I will be asking him: “Can you tell me what poor blood drainage would do to a brain? If your brain wasn’t draining properly would you be concerned? Can you explain to me why the CCSVI hypothesis is implausible? It is not enough to say we know that it is auto-immune because MS responds to DMDs. Is it possible that something is prompting the immune response? Could it be CCSVI?” Just some thoughts