Our presentation was simple to communicate the struggle people with Multiple Sclerosis have to obtain testing and treatment for Chronic Cerebrospinal Venous Insufficiency (CCSVI). Our presentation highlights the blockages we encounter when trying to access treatment. At a high level, these include the dependence of Neurologists on Pharmaceutical treatments for MS, lack of funding directed towards non drug-based therapies (represented by the giant purse), and medical politics (red tape) as hospitals withhold treatment from people with MS after misguidance from neurologists. The presentation ends with a sense of hope which is represented by the blue balloon. Please join www.facebook.com/CCSVI-AUSTRALIA
Tag: Angioplasty, Australia, balloon, Bourke, ccsvi, Flash, Melbourne, Mob, MS, Multiple, sclerosis, Street, vein
@gypsy1701 Thank you
All the very best to your wife. You are right, this is not a complicated or dangerous procedure – it should be done at home where you can get follow up. For those who say that Neuros are not providing barriers to this treatment… why are people having to travel abroad from countries that are well equipped to do it? It is appalling and a waste of money that few can afford. We are all grateful tho for every person who can do this – it adds to the ‘anecdotal evidence’
@ThePennygirl Thanks Susan xx
@kezzcass Dear Kerri, with these wonderful videos and the efforts you go to for the benefit of all……..I am proud of you! xxx
Susan;
I am somewhat confused by your comment. I made the comment on the flash mob video based on MY experience and MY thoughts about MS and the drugs or procedures involved. Tysabri has worked, and IS working for me, so why the vitriol regarding my decision to continue taking a drug that has gotten me out of a wheelchair and off of crutches? I just asked prudent and logical questions and, by Kerri’s response, she agreed.
Please tell me—if you would—how my comments lacked compassion.
Well done Kerri and all of you there in Australia…so proud of you. From MS CCSVI EIRE…
Kerri and the rest of CCSVI Australia BRAVO!!!!!!!! What a great way to show the world
Love the song choice and seeing some faces I know! So proud of our MS Famliy!
Hugs,
Andrea
So sad to see this turning into a forum of “one against the other” statements. Getting CCSVI available is a good thing whether it works or not. But to accuse people on here of not being compassionate is not helpful in any way. Vern is one of the most compassionate people I have met on here. I don’t take Tysabri; he does not say I am wrong. CCSVI did not work for my friend, nor did Tysabri; I just support her. We are all in this “Let’s find WAYS to rid us of the MonSter!”
@bvalerieaThis is not a debate between Tysabri and CCSVI. 2.5 million people have MS, only about 70,000 have ever taken Tysabri, only about 1000 in Australia. In terms of the big picture Tysabri is barely in it for the vast majority. We want to see investment into finding out whether CCSVI could get rid of this MonSter.There have been zero dollars spent on it in Australia to date and our video is about getting it on the agenda here. Vern’s comment could be viewed as opposing our effort.
@andie221 Thanks lovely lady
@swalshable Thanks
@MSVlogSupport Thanks Andrea. So fun to get together with others (glad you picked out some familiar faces). I am proud of us all too. Kerri x
FANTASTIC! The immediacy & importance of CCSVI can’t be underestimated, many with MS have had their health & independence restored!!
Don’t stop at CCSVI, don’t accept anything less than the ur full birthright “ABUNDANT HEALTH”! People of the likes of BILL CLINTON, HUGH JACKMAN, MIKE TYSON, OLIVIA NEWTON JOHN, GREG CHAPPEL have awakened to the next evolutionary milestone for well-being a PLANT BASED DIET! (Vegetarian, Vegan or Raw)
/watch?v=z3xOU2tLl7g (another inspirational video with a mob)
Wonderful to see such a turn out. Love the message.. we all know it works and we all know how unfair it is not to receive this treatment when so many others are treated for similar conditions.
@veganath
) Thanks,
@Doviedove Thanks. You are so right.
GREAT VIDEO! GREAT FLASH MOB!
@Prissie28 Aw thanks Astrid.
Great vid, good choice of the music!
☆☆☆☆☆
@Zzozze Thanks
)
Hi Kerri, Great Flash Mob. Did it make the Melbourne Papers or media. I hope so.
… Saw you dancing. Are you walking without your cane now??
Kindest Regards, Lou
@LouLou3078 Hi Lou, we had a journo and photographer (freelancer) so hoping to see it and the broader story coming out as a feature health article in a major paper. (not sure if I’m meant to tell everyone that!) No cane for me – I don’t think anyone watching me would notice that I walk differently, I only have a vague stiffness in my step now.
Congratulations to all of you guys and girls who took part in this FLASH MOB.
x x x
Thank you to you all for getting this out there in the public domain for all of us with MS.
Keep up the good work and i will do what i can from my end.
Merry Christmas and a Very Happy New Year to all
@sharpyangel Thank you – how’s things in Perth going? Have a great Christmas
)
CCSVI Clinic Receives Joint IRB Approval for Aftercare Protocol Study.
The joint application between Noble Hospital and CCSVI Clinic has been approved through the IEC Institutional Review Board (IRB) that will allow researchers to use patient data to study their new extended and enhanced aftercare treatment protocol. Please Call 888-419-6855 to know more about participating in the study. Log on to ccsviclinic. ca for more information. Email apply -at- ccsviclinic. ca
A new CCSVI clinic it is available in Bucharest, Doctors team from Bucharest are certified by DR.ZAMBONI in Ferrara and by Dr. Simka in Poland to perform the CCSVI treatment/procedures.
The price of the treatment INCLUDING Travel Expenses(flight ticket,accomodation,transfers,all exams,angioplasty) is 8200 USD for USA/CANADA patients and for europe patients 5100 Euro Incl. Travel expenses.