This is the video where I explained what my cardiologist told me on the phone about the Ultrasound test that I did last week. Please, go and check about CCSVI on Facebook: www.facebook.com www.facebook.com www.facebook.com Today, January 20, 2010 I went back to the hospital where I had the last two tests that I have to do to check the function of my heart. As I mentioned before, I decided to go to a cardiologist because I have been having strong chest pains, burning sensation in the thoracic area, spasms, palpitations and irregular heart beats especially at night time before falling asleep. While I lived with the symptoms for about two weeks, I took the step of going to see the cardiologist that, after listening to my words and the explanation of what CCSVI is, agreed to let me do the ultrasound that I did last Thursday. Today, while I was at the hospital doing an echocardiogram, I received the phone call from the doctor and when I got home I called him back and I was able to speak to him. He was kind and attentive and I could tell that he had found something by the tone of his voice. He told me that, while the right side of my neck seems to be perfectly fine and that the jugular vein in the left side is ok, he saw that, in the very back part of my neck, in a very difficult area to see, there is a vein that is not draining properly. He admitted that he had never paid attention to these things before and that he wasnt expecting this. I found him quite special because …
Tag: ccsvi, dr., MS, Multiple, sclerosis, ultrasound, ZamboniDottor T. Il divulgatore scientifico
Dear Isabella,
I am so happy about this step and I am going to enjoy it for a bit longer!
Just like I said in the video, I plan to meet the cardiologist, find out more about the results of the other tests that I just did and then I will probably go up to Buffalo and possibly redo the test and see Dr. Zivadinov. I am also raising funds for the Buffalo center and I am going to be busy with that too.
I am not going to have a treatment done yet. I have to find out more!
I hope you are ok. Bises
Angela,
One question. Do you have spinal lesions?
I wonder if your azygous vein is draining properly.
This doctor sounds open and honest.
This is a big step.
I am proud of you for being persistent.
God bless,
Mark
Dear Mark,
I do have lesions on my spine and many in my brain. The cardiologist didn’t mention names of veins but our conversation was on the phone and I am sure that I will find out a lot more when we will meet in person at the next appointment. It is very possible that the vein that is not draining properly might have something to do with my spine. I am so curious to find out more! I will let everyone know more details as soon as I get them! Thanks for the comment and take care!
Hugs
Angela
My dear Angela !
Wish you ALL the best my dear all the best !!!!
ave to talk my MS Specialist about it have to hear what she think about it and she is the best in Country !
Primoz
Caro Primoz,
yes, please, talk to the MS specialist that you know in Slovenia and talk about CCSVI to cardioligists too, if you have the chance to do so.
Thank you for the wishes! Ti auguro il meglio anche io!
Un grande bacio,
Angela
Mark,have spinal lesions been specifically linked to problems with the Azygos vein? My azygos vein: don’t know anything yet about it… (Simka could not check it with the doppler) would need an MRV.
Steffi
WOW, Angela!!! That is the best news EVER!! You are so kind to share this valuable information with us! I love watching your videos because I can feel that you really care about others!
Dear Anna,
thank you for coming and for writing! I saw your last video and I am so glad that you are doing well too!
I dream of a day when we will have a better way to treat our MS and to cure it!
This was just a first step for me and I am looking forward to the day when everyone will be able to do the right test, find out about CCSVI and get the right treatment so they can get better!
Take good care, keep up the fight and keep on smiling!
many hugs
Angela
I’m so glad you found good people,dear Angela.May God help you always!
God loves people like you because you love so much this life and all the people around you.
I wish you all the best and may God shield you on every STEP!
Dear Cristina,
I was so fortunate and so lucky to meet the right people once again!
Every time I meet someone, I open myself and I show who I am from the very beginning and sometimes this works out well for me and sometimes it doesn’t….This time it did work and both the doctor and the tech person that did the test were very kind and they were touched by my MS story. Thank you for the wishes and for the blessings. I appreciate them a lot!
Take good care and have a good night,
hugs
Angela
Not that I am aware of, but CCSVI has made me wonder what vein would be blocked to cause spinal lesions.
I have always just kind of wondered and I like to ask questions for further study.
I would definitely ask why spinal lesions occur if I got to meet with Dr. SImka, Dake, Zamboni et al.
Dr. Zamboni’s diagram shows that there are blockages that will cause an alteration of blood flow in the spinal area. ( u know those red arrows) I’m interested too because most my lesions are in the spine.
Dear Vivianne,
I am sorry I didn’t get to answer you before but YouTube is giving me some trouble lately and I never saw your comment! Dr. Zamboni did show the relashion between the lesions on the spine and the venous problem and
I am interested in this too because I have some lesions on the spine also and I would love to ask him lots of questions about this.
I wrote to him a couple of days ago and he answered me right away but I didn’t mention this in my e-mail. Maybe next time!
Take care!
Cara Angela,
Thank you for sharing this information with us!! This is all so exciting! I’ll talk to you soon!
Ciao!
Lauren
Thanks, Lauren! I want you to know that I am always here for you so if you need some information about this, let me know!
This is very exciting and, soon enough, we will have a possible new way to treat our MS!
Stammi bene!
Un bacione,
Angela
Dear Angela, thanks for your explanation and detail. Hope you keep us posted on your next steps and how you made them happen. I just found you and Judy (Maryland) videos today. Wow, this is exciting. I’ve had MS since 1977 (1st attack) with visible symptoms since 1993. Thank you for action and encouragement. Barbara
@silbitpro2 Dear Barbara,
thank you for the message. I made an updated video about 3 weeks ago explaining why I didn’t have the Liberation procedure yet. Life happened and many things did change in my life but. through it all, I am still a strong activist for CCSVI and I will always be! I meet Judy in Baltimore when I go to take Tysabri and it’s good to meet a YouTube friend in person! Hopefully, we will all be able to get the Liberation soon! Hugs, Angela
Glad to hear you’re OK. I took tysabri for 36 months– no side effets- all positive- first two months after stop was hard- emotional down and frequent loss of balance- just started ampyra- feeling a little more gait stability.
@silbitpro2 Dear Barbara,
I am so glad that Tysabri worked for you too and I understand why you stop taking it after 36 infusions! I have done only 16, but I might stop after 24…Thank you for telling me that it’s possible to have emotional problems after stopping this drug and thank you for telling me that Ampyra has helped with your gait.
Take good care and thanks for writing,
hugs
Angela
oin my group on facebook… ccsvi and the liberation treatment in the USA. help me fight
July 30 — I went to local Hospital’s Cardiology unit for my Doppler…gave technician the Zamboni/Haake protocol BUT she just did Generic Mode of testing…
pressed very hard on veins in my neck…yikes…
Good news: I’ve got a local IR appt. next week….so every bit of testing helps?
thanks for your posting Angela
@kkkkkkatherine Dear Katie,
thank you for the message! I am so glad that you have the appointment with an IR! This is very good news because he/she will be able to help you more than any other doctor would do! About the ultrasound, it’s very important that the person doing the test is trained and knows what it’s looking for because the person that did mine didn’t know anything about CCSVI.
Good luck with the test next week! Please, let me know how it goes!
Hugs,
Angela
Call CCSVI Clinic; (404)461-9560 to schedule your screening today in Fargo, ND or email us at apply@ccsviclinic.ca. Yes, get screened within the US. No waiting….find out more at ccsviclinic.ca
Get screened in the US. Call CCSVI Clinic (404)461-9560 to schedule your pre- and post procedure screening today in Fargo, ND or email us at apply@ccsviclinic.ca. Find out more at ccsviclinic.ca
@kkkkkkatherine You are very welcome. I hope what I do can help someone in need of information and in need of hope
Thanks for the comment and good luck with your MS/CCSVI journey. I do believe every bit of testing is important but I also think that it’s very important that the testing is done in the proper way so the patient can take the proper steps and get treated the right way. Good luck with everything!
Take good care.
Hugs,
Angela