CCSVI Treatment – glad,mad,sad

Just doing a bit of venting about the frustrations of the CCSVI controversy

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6 pensieri su “CCSVI Treatment – glad,mad,sad

  1. Sorry, I had a slip of the tongue for some reason I said I went to Costa Rica, but I did not. I went to Costa MESA, CALIFORNIA. Just wanted to clarify that…

  2. That was the calmest venting I had ever seen! Well done – I agree with everything you say and I think you have explained it brilliantly. I also like your open honest approach to this whole issue – it is really the only way. So happy you are feeling improvements to your functioning – this is what really matters at the end of the day. Keep well. Kerri

  3. Let the results speak for themselves, small is good, big is better. Patience is our nemesis, & ignorance by people we relied & still rely on.
    It does all make sense to me, they are welcome to prove me wrong, I’ll listen.
    Every day is a challenge, I believe we’re up to it.
    Good to see things looking brighter.

  4. Thanks for the kind comments. It is my wish that those of us that have had the CCSVI treatment continue on a positive but realistic path. In no way do I want those involved in this controversy to view us as emotional and desperate individuals as the media wishes to portray us. It is with firm and great determination, knowledge and calm that we should project what needs to be said and only then will we get the global results for this treatment that is needed. United we will do it !

  5. Great report of improvements! The subtle little changes ate still very exciting. I still remember getting downright giddy the first time I spread my toes!

  6. Thanks Todybear010, that is exactly what I was trying to say in the video. Only another MS’er can really understand. Those subtle little changes can mean so very much !

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