It has been 6.5 months since my initial angioplasty. I have not relapsed and generally I am doing very well. I do suspect I have restenosed and have some minor regression which I discuss. Have an MRV & MRI scheduled for late October which will be interesting. In the meantime heaps is going on regarding CCSVI research in Australia, trying to raise awareness to the wider population and see treatment available for people who have venous abnormalities without unfair barriers. Link to Australian Doctor Article “Vein Hope” www.mediafire.com Thanks for watching
)
Hi Kerry, tried to look for the “Kuwait” video, which I think I have seen before – where the blockages were further down the spine – but have not been able to find it – I just wonder if you have any luck, if you have I wonder if you could give me a reference. Keep up the videos – you are looking better every day – Sorry to hear about your vision – Total cost for my “venogram” about $1450.00- hope I get some back on hospital insurance – my neurologist dos not know – Cheers
@kezzcass Thanks Kerri, I will certainly let you know how it all pans out. Cheers, Mary
@mmpod70 The video is now in my favorites: “Dr Tariq Sinan” Go to my channel and you should see it there. I hope you get some of that back on private health. Yeah I think few Neuros know sadly. Ah well, they’ll catch up hopefully. K
Hi from Canada, Kerri it is wonderful to see you again as I have been following your videos since the beginning. It looks like this is a world war of sorts and countries around the world are all the separate battlefields. May you have continued success with getting your restonsis treated in a way that will keep the veins open! I am sure I am not alone in wishing you God’s blessings for maximum healing. Gentle hugs,
Vanda
@kezzcass Hi Kerri, Sorry haven’t got back sooner. Just life stuff happening.
… Lou
Absolutely wrapped to hear about the Myoclonic Jerk, almost completely gone & also, completely off your medication… No one could Placebo that. Would love to be a fly on the wall when you visit your Neuro in November.
@Keetcha100 Hi Vanda, Yeah I know what you mean about the battle – at least we are now in a position to compare strategies! haha. It is just angering that one side seem to have all the resources and power and the other is suffering and lacking support. But if CCSVI is something amazing, and I think it is, then it cannot be pushed underground now
) Kerri
@LouLou3078 hahaha perhaps I should take a spy-cam in! They know me well enough now I will probably be searched on my way in for possible recording devices. hahaha (only kidding of course!) Kerri
Hi Kezz you are in my thoughts! my new wife and I will be Liberated this Friday in nish Serbia she has stenosis in both jugs and was in the Buffalo study early this year, I have ccsvi in my left jug’ Wish us luck I will keep you informed of our progress
yes we are being Liberated together,
Trev. from Belgrade
@gekiryudojo Thanks Trev, How romantic – being liberated together!
) I am really happy for you both. I enjoyed watching your wedding online – it is nice to see some good news going around. Hope you will report back how things go on Friday. Kerri
Teni And I were Liberated on Friday the 15th Oct 2010 in Nis Serbia we are both doing very well I will be doing a Video very soon Love from Both of us!
@gekiryudojo Great to hear Trev
) Look forward to your video. K
Kerri…I’m truly sorry for your apparent Return of MS sx….we are…dammit !…STILL in the early stages of this ‘Ccsvi treatment’ process…
Prayers are going out for you daily…this WILL all be Resolved in due time..Thank you, thank you for being such a gallant Pioneer in these uncharted waters…
Hold on to what you know is true…have you ever tried Low Dose Naltrexone LDN? I just starting and it IS Amazing ‘magical’ stuff!! love, k.
@kkkkkkatherine Hi there
Ah well such is life with MS right? Will keep pushing through. Thanks for your prayers too. I have not tried LDN and now I am coming of Tysabri I will look into it I think. What are you noticing is different since being on LDN? Kerri
hi kazz, I too take LDN. It has made a hugh difference to me. I feel like my MS is ‘on hold’. I can sleep really well, the tingling has died right down and I have more energy. well worth a try! I am in the UK waiting to go to Glasgow for a doppler scan in early 2011. Thank you for your up-dates. You are truly an inspiration. Hope all is going well for you. Liz
Kerri, how are you doing? i hope all is well. the purpose of this message is to share a laugh. Girl it seems that angioplasty is gone be an ongoing procedure for you, (hopefully not). \now the joke,i know when my friends with Crohn’s disease had to do multiple surgeries in his tummy, he told the surgeon not to close him up but rather put a zipper fly for easy access to his stomach for the next time. Anyway, i hope you do well. i stopped tysabri 6 months ago ibn anticipation of fty720
Kerri, how are you doing? i hope all is well. the purpose of this message is to share a laugh. Girl it seems that angioplasty is gone be an ongoing procedure for you, (hopefully not). \now the joke,i know when my friends with Crohn’s disease had to do multiple surgeries in his tummy, he told the surgeon not to close him up but rather put a zipper fly for easy access to his stomach for the next time. Anyway, i hope you do well. i stopped tysabri 7 months ago in anticipation of fty720. now approve
@wheeliz Thank Liz, yeah I will look into LDN (shh don’t tell my Neuro – already sensing I am in the bad books with him in a really big way!) I hope all the very best for you and the scan in Glasgow. And thanks for your lovely words. Kerri
@astronautsandwitch Well I had my MRI today and next week I see the Neuro so will be interesting to see if there is any current activity in there. Yeah I hope I don’t have to have this procedure too regularly… ah well just one doctors visit at a time! I totally understand about the zipper – perhaps they can just leave the tube in me and put a rubber stopper in my groin?! hahaha Actually that sounds like an awful idea on second thought. I have stopped tysabri this week. No more for me!
I have meant to tell you how much I appreciate your videos for some time. My first angio was a little over six months ago. My second was three months later. I didn’t restenose, but I did not have the azygous or outer jugulars done the first time.I hope things go well for you. My last MRI showed a regression in some of my lesions both in brain and spinal.Thank you again for all you are doing to help the rest of us.The doctors are learning so much as they go along.
@mammananny Thank you so much for your encouragement. I am glad you haven’t restenosed – although this is the reality for me as a doppler last week confirmed I had restenosed again. Fortunately I am able to be retreated. I agree, the vascular doctors are learning more almost daily which is fantastic for us. I hope you are keeping well.
I’m so glad you can be retreated. I did have stents and that may be why I have not restenosed, but yes I am doing great. I can’t believe how much a person can heal.
I’m so glad you can be retreated. I did have stents and that may be why I have not restenosed, but yes I am doing great. I can’t believe how much a person can heal.
I’m so glad you can be retreated. I did have stents and that may be why I have not restenosed, but yes I am doing great. I can’t believe how much a person can heal.
I’m so glad you can be retreated. I did have stents and that may be why I have not restenosed, but yes I am doing great. I can’t believe how much a person can heal.
I’m so glad you can be retreated. I did have stents and that may be why I have not restenosed, but yes I am doing great. I can’t believe how much a person can heal.I think yours is the first video I saw.