Hi everyone, here is my update on how I am feeling 20 days after having a venogram and ballooning of stenosed jugular veins.
Tag: ccsvi, jugular, Liberation, MS, Multiple, narrowing, procedure, sclerosis, Stenosis, veinsDottor T. Il divulgatore scientifico
@justbran12 It is a totally different way of looking at it isn’t it when you consider blood flow? I think it is very beneficial to keep active and healthy. Well done on winning those matches! K
@MikalinaJ Ja es ist sehr gut!!!! K
Ich werde die “Libération” Hier in Taiwan bald – Vielen Dank
@MikalinaJ Das wird so fantastisch. Freuen uns, wenn das passiert. Kx
hekko
Yves Savoie’s (president of MS Society Canada) anual salary is $450 thousand as reported by ccsvi Foundation – HOW ON EARTH WOULD SHE WANT A SOLUTION TO THIS DISEASE. HOW DARE SHE EXPLOIT OUR ILLNESS. YOUR LIES AND DECEPTION ARE BLATANT. THE MSS NEEDS TO GO TO HE.!!!!!!
@MrLeooreo I read the latest statement by Yves Savoie – I understand the pain! Here in Oz our MS Society is supportive of CCSVI research and treatment… it seems it is our Neuros and MS Research Australia that want to hold back. So frustrating and so hurtful for people who are suffering. My heart is with you. Kerri
Am waiting for family videos! I hope you can share some time, Big hugs susan
I missed this video OR FORGOT I watched it… I really hate losing memories! my short term is so bad! its really pathetic!
You given me, faith and endurance to carry through! I was born under the LEO sign. People say am the fighter?? Am struggling to find the one thing!!!! that I was known for? A SLOW DEATH WAITING for the trials is crazy.
They want to give more drugs cover the others! NOT
@ThePennygirl G’day Susan, Understand the frustration of short term memory probs! Ah well at least you can watch a movie twice and the end is always a surprise ;o)
I have done another video today with an update – these trials are taking forever. More drugs?? Makes you wonder if any of it is worth it sometimes when none of them are a cure. Keep holding on, Kerri x
Your to sweet! Thank you ! More drugs are not working. I see all these ads for Breast Cancer (good thing) BUT what about MS? we our and have become a BUSINESS) with an economy of the ill people! They do not have our interests in priority, it has become a living, RAISE MORE and more! less ten 25 percent goes to research…. those our US stats, very unproductive !
Hugs susan
I enjoyed your video very much Susan. Thank you very much for sharing. I hope someday this beast is a thing of the past and perhaps stories like yours will help advance the progress of the fight in the right direction. Peace! Keep us updated.
@worktosser Haha, I am Kerri ;o) I agree, every video I just hope makes some smaller difference and one day we can be MS free. Thanks for your comment. Kerri
have you tried the swank diet? I used to be so fatigued as well, but not to the extent you describe. after a few months on the diet I noticed my tingling went away, my energy was up. Now three years later, I have had no relapses and feel 80 percent normal.
how much does this cost no one puts on u-tube the cost and if you have no insurance do they do it for free usa is it here or other countries why dont people who have this put how much it is don’t give hope when people dont have the money
@JustinTymeToday Hi, Actually I have been doing the Jelinek diet for the past few months. It is similar, no meat or dairy or fats that are solid at room temp, with lots of fruit/veg and you can have seafood (with omega 3s), and Vitamin D3. I kinda think I may as well do everything I can to be as well as possible. I am sure it all contributes.
@AWDESIGNS8 I have actually discussed the costs related to Australia but I think because it is so variable depending on what country you are in. I of course could not tell you about the USA. Privately in Australia it is around $3000 (this is covered by health insurance) but for residents of Australia it is covered under our medicare system and there is no out of pocket expense if you go to a public hospital.
ok i’m not on medicare you have to be 65 years old for medicare how does a young person get it and then the cost to go to the country have no insurance so i’m asking you again how much the total coast would be 15,000 well thats alot why do doctor put a price on hope thats crazy get you all hopeful to say its 10,000 and up gee doc thanks.
@AWDESIGNS8 Like I said I don’t know what it costs in your country. Perhaps you can check some other youtube videos of people in the US who have had the procedure and write to them and ask.
this is what i’m trying to say i’m in the usa in your country if you have it then thats great but maybe thats what people have to say when they make this videio because if it is in the usa our ms doctors would do this ,
@AWDESIGNS8 you can get Medicare under 65 in the U.S. if you are disabled AND have enough credits from your working/job history. If you don’t, you can get Medicaid, some can get both Medicare & Medicaid depending on your state, etc. I have both, as for either paying for the procedure, I think it’s easier to watch for a clinical trial near you as I have.
@kezzcass what country are you from we do have one here in ohio cleveland clinic dr fox i hope it works for you i say go for it if you can we all need back up. god is with you. love ya april
@COLORSNTREES Sounds like good advice for those in the US
@AWDESIGNS8 I am in Australia. Totally different system to that in the US.
Thanks Kerri
@kezzcass I was quoted $3000-10000, and not covered by Medicare or Medicaid at this time, for Albany NY practice. HTH
@COLORSNTREES Thanks for that.